Here and Now

I have said before that Taylor seems to be doing the NICU dance... the past two-three days have been tiny steps forward and we are so thankful. It has been wonderful to not have a bad feeling when leaving her at the end of visiting hours the past two days. Sometimes I leave and am afraid we will get the dreaded phone call in the night telling us to come in a hurry. Thankfully we have not had any of those lately.
Taylor still has a long journey ahead of her before she can come home but she is doing pretty well. The doctors have told us to be cautiously optimistic about each day. I have learned that I need to look at the here and now each time I visit with her. We spend our hours with her singing, telling her of her family and friends, praying with her, and just watching her. Each and every moment is a blessing that we will never forget. Baby Daddy sings classic rock songs to her while I sing church songs and lullabies. (I think she likes my songs better!) One of my favorite praise and worship songs is called "Here and Now"- it is a perfect song for Taylor and Mommy. It is unexplainable the joy of watching her grow and develop each and every day. I look back at her first pictures to now and am amazed at the growth and changes I see. God is blessing us with the gift of seeing our little one become what he would have her to be. "He's Still Working on Me" is a song that Taylor hears daily- it is so true.
Main concerns right now are her lungs, the PDA between her heart and lungs, her blood pressure, and her digestive system. There are surgeries that could help with each of these things, but Taylor is not stable enough to have surgery at this point. Please pray for healing and growth for our little one. As my Dad said in an earlier post, Taylor is doing well in part because of the awesome prayer and support from each of you. We are blessed beyond measure to have friends, family, and complete strangers praying for our little miracle.
It is awesome to be able to touch her more often as her skin has developed enough to not risk infection. I just love singing to her while holding her little hand or her head. We do have to be careful or we can overstimulate her with too many touches. (I think we may have done that last night.) Sometimes when she is crying (no sound, just tears) I just have to touch her though. It is hard to see my little one suffering... I try to be positive and reassure her that she is ok and to rest in the arms of Jesus. I am grateful He is with her all the time- she is in good hands!
Thanks again for the support and prayers. We could not do this without you all.