Bullae Bullae

We are still at a standstill in regards to Taylor's lungs. After talking with the main doctor today, we found out that the bullae is close to Taylor's heart. The docs would not be able to do surgery because of the location of the bullae. And apparently there are also many types of bullae and the kind she has in inoperable. So we play the waiting game. The docs were going to remove one chest tube because it was not working and had clotted with blood. The other will be left in place to "catch" the air when the bullae bursts. The doctors will try not to have to replace the second chest tube if they can help it. They have poked my darling baby in her side so many times that there isn't much room left to work with. We are praying that the bullae bursts on its own soon so the need for chest tubes will be over and she can be pain free. The ventilator settings are quite high- they are consistently higher now than the past few weeks. Please pray that her lung problems clear up soon.
On the up side, Taylor is doing quite well with her feeds and is now taking 1.6 ml of milk per hour. Her tummy was a bit bigger today but the docs were not worried about it. She pooped on her own this morning and it was quite a lot. I often wonder how that much poop can come out of someone so small! Her urine output is still good along with her sugar level, bloop pressure, and heart rate. For those who don't do grams (I am included in this number) 550 grams= 1 lb 2 ozs. She is growing like a weed and I am thankful. It is fun to look each day at the changes happening to her little body. I went back and looked at all the old pictures and posts yesterday and was amazed at her progress. She has changed so much. I look at her little ears everyday as they are still forming- I always have to make sure the "cap" isn't squishing her ears up! The nurses know that I will fix them and let me be. I have also started to put her leads back on when she pulls them off. She does love to pull off her contraptions. I think the only reason some of them don't get pulled out or off is because they tape them up so well she can't move them. Today her favorite thing to pull on was her ventilator tube in her nose. She was trying so hard to get it to move- it was funny. She does get quite upset when she cannot move what she is trying to move or get her thumb into her mouth. She cries real tears and it kills this Mommy. I hate to see her cry :( But she usually calms down when baby Daddy or I sing or talk to her. She has some funny looks that she gives us sometimes and some serious ones as well. It is a joy to be with her each and every day.
We continue to tell her all about her prayer warriors. Thank you for lifting up our miracle girl to the throne. We love and appreciate you all.